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Save LGBTQ+ and climate data as Trump deletes

Government websites scrubbed under Trump orders

Experts warn that green policies put vulnerable communities at risk

Courts file lawsuits against the government for data removal

Adam Smith

Following a series of executive orders issued by President Donald Trump, thousands of U.S. Government web pages have been altered or removed. The orders target what the administration refers to as "gender ideologism extremism" (or environmental policies).

To make rational and effective public health policies, you must have access to accurate, comprehensive data. Charles Gaba is a healthcare data analysts who works to support information on the Center for Disease Control and Prevention's (CDC) website.

Health agency officials took offline datasets from the CDC late last month, including the Social Vulnerability Index and Environmental Justice Index used to quantify disproportionate risks of health among different demographics.

The average person should consider this as censorship.

The CDC, along with other federal agencies, has also purged data on HIV in transgender individuals and disparities in health among gay, lesbians, bisexuals and transgender youth.

Benjamin stated that removing information would make it more difficult to track infectious diseases such as HIV and mpox and could have a severe impact on everyone.

To stop the move, organizations such as Doctors for America and Minority Veterans of America filed lawsuits with the U.S. Government.

The lawsuit filed by Doctors for America stated that "the removal of this data robs researchers of information they need to treat patients and develop policies and practices that protect the health and safety of vulnerable populations as well as the nation at large."

Preserving Data

The Office of Personnel Management (OPM), the U.S. Government's Human Resources agency, has told all departments to stop programs that promote gender ideology or "recognize" women as biologically female and men as biologically male.

Academics and online preservation organizations, which keep a record of U.S. Government as it changes through time for historical research and educational purposes, have increased their efforts to backup information.

Gaba created an online index of CDC sites using Internet Archive. This non-profit website allows anyone to backup a website simply by sending a URL.

Other weaknesses exist in the process. The archived library may lead to broken or dead websites if the site has not been backed up completely, if malware is detected or if the server hosting the website is down.

The main databases of public health were not saved. They had to be downloaded separately.

The Public Environmental Data Project (PEDP), a coalition of volunteers that works to preserve public access federal environmental data, has archived the Climate and Economic Justice Screening Tool, developed by the Council on Environmental Quality.

The federal agencies use the CEJST to identify areas with significant environmental, economic and social burdens. These communities need targeted investments from environmental initiatives.

The Public Environmental Data Project has now replicated the Environmental Protection Agency’s ‘EJScreen’ tool which combines demographic and environmental indicators to assess higher-risk communities. The U.S. Government took it off-line between February 3 and 5.

CHALLENGES ARCHIVE

Archiving government data is nothing new. The End of Term Web Archive (which includes the Internet Archive, libraries, and research organizations) has been saving government websites for the past five presidential terms.

The rapid policy changes of the Trump administration have increased the urgency.

Katie Hoeberling is the director of policy initiatives for Open Environmental Data Project. The project promotes environmental data that can be used to facilitate community-driven governance, information sharing, and support.

She said that taxpayer dollars had paid for CEJST, EJScreen and other software, so the public "deserves access" to them, whether it is for research, advocacy, litigation or just to help people better understand their environment.

Legal means could be used to recover more data, such as the lawsuit filed by Doctors for America against the CDC and the Food and Drug Administration.

The lawsuit claims that removing data on youth behavioral risks, HIV support, and FDA guidance regarding diversity in clinical studies would hamper vital research.

The CDC refused to comment on this lawsuit. The FDA and HHS have not responded to a comment request on the lawsuit.

Researchers are worried that even if the existing data is preserved, new data may not be collected. This could affect future research and policy accuracy.

Benjamin added that Benjamin's statement about the inability to use information collected for a specific purpose for a different one was a good reminder of how even small differences can have a huge impact on areas like disease prevention.

(source: Reuters)